Patients and Caregivers Track

Program help:
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: Open translation
: Open voting

Saturday, 16 March

  • Breakfast

    06:00 / 6:00 am

    -

    Enjoy your breakfast. We recommend being ready by the conference room at least 10-15 minutes before the day’s program start to avoid queuing at the scanning point.

  • Check-in and Scanning

    08:00 / 8:00 am

    -

    All participants will be scanned before entering the conference room

    Westin Grand 2+3

  • Welcome to Day Two

    08:30 / 8:30 am

    -

    Rachel Annals

    Westin Grand 2+3

  • Raising HAE Awareness in the Americas

    08:45 / 8:45 am

    -

    Fernanda de Oliveira Martins, Javier Santana

    Westin Grand 2+3

  • Empowering HAE Advocacy – a Comprehensive Toolkit

    09:15 / 9:15 am

    -

    HAEi's Regional Patient Advocates for the Americas region

    Westin Grand 2+3

  • The Path to Success in Americas – Take Action!

    09:50 / 9:50 am

    -

    Anthony J. Castaldo, Fiona Wardman

    Westin Grand 2+3

  • Coffee Break

    10:15 / 10:15 am

    -

    Foyer

  • Check-in and Scanning

    10:30 / 10:30 am

    -

    After each break, all participants will be scanned before entering the conference room

    Westin Grand 2+3

  • HAE in the Americas

    11:00 / 11:00 am

    -

    Member Organizations’ Panel Discussion

    Fernanda de Oliveira Martins, Javier Santana

    Westin Grand 2+3

  • Patient Stories

    11:50 / 11:50 am

    -

    Westin Grand 2+3

  • Lunch and Exhibits

    12:30 / 12:30 pm

    -

    Enjoy your lunch, and remember to visit our supporters’ exhibits in the Foyer before joining us again for the exciting afternoon sessions

    Oceanica

  • Check-in and Scanning

    13:30 / 1:30 pm

    -

    After each break, all participants will be scanned before entering the conference room

    Westin Grand 2+3

  • Patient Story

    14:00 / 2:00 pm

    -

    Westin Grand 2+3

  • HAE – 10 Things Patients Need to Know

    14:20 / 2:20 pm

    -

    Prof. Bruce L. Zuraw, United States

    Westin Grand 2+3

  • HAE ‘Hot’ Topics

    15:00 / 3:00 pm

    -

    Scientific Committee

    HAE in Women and Pregnancy
    Prof. Anete Grumach

    HAE in Children and the Importance of Family Testing
    Dr.  Francisco Alberto Contreras-Verduzco

    How Patients Benefit from Clinical Trials
    Dr. Huamin Henry Li

    Clinical Trials: What can Patients Expect from Taking Part
    Dr. Rosario Espinoza Mora

    Westin Grand 2+3

  • Coffee Break

    15:40 / 3:40 pm

    -

    Foyer

  • Check-in and Scanning

    16:00 / 4:00 pm

    -

    After each break, all participants will be scanned before entering the conference room

    Westin Grand 2+3

  • Latest Developments in HAE Science and Therapies

    16:25 / 4:25 pm

    -

    Prof. Marc Riedl

    Westin Grand 2+3

  • Expert Panel: Q&A and Discussion

    17:00 / 5:00 pm

    -

    Expert Panel: Prof. Anete Grumach, Dr. Olga M. Barrera, Prof. Marc Riedl, Prof. Bruce L. Zuraw facilitated by Prof. Marcus Maurer

    Westin Grand 2+3

  • Closing Remarks

    17:50 / 5:50 pm

    -

    Anthony J. Castaldo, Henrik Balle Boysen

    Westin Grand 2+3

  • Dinner and Entertainment

    20:00 / 8:00 pm

    -

    Westin Grand 2+3

Sunday, 17 March

  • Breakfast and Check-out

    06:00 / 6:00 am

    -

    Please note that:

    • Light breakfast is available in the Lobby from 04:00 to 06:00
    • Breakfast is available in the Pacifica Restaurant (in the Lobby Area) from 06:00 to 10:30
    • Check-out must be done before 12:00 noon (12:00 pm)

    Busses to the airport

    • Please make sure to leave the hotel at least 3 hours before flight departure
    • Busses are for participants with flight tickets arranged by HAEi
    • Busses departure times:
      • 04:00 (4:00 am)
      • 06:00 (6:00 am)
      • 08:30 (8:30 am)
      • 10:30 (10:30 am)
      • 14:00 (2:00 pm)
      • 18:00 (6:00 pm)

    Thank you and safe travels home!